"It could take up to two years, they say," the elder Huff said. "He's on the list right now, and I was told he was 332nd on the list."
Administration officials did not respond to requests for comment Wednesday. Several legislators in Huff's area attended a Sunday press conference in Bridgeport meant to bring light to his case. Another family seeking help continuing Medicaid services, for a 38-year-old with an irreversible muscular disorder who also relies on a ventilator, also took part in the press conference.
Collin Huff has mental as well as physical disabilities. His mother described some of his favorite gifts received Tuesday: a laughing Elmo doll, and stuffed versions of the children's TV characters Peppa Pig and Pocoyo.
"This child has received more love in his life than most of us can hope to," Ashcraft said. "He's just so capable of bringing people together, and that's what we're hoping will happen now."
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