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David Stanley Ford

Insurance, donations help cover costs for Duncan baby’s care
HealthDonors from across U.S. send money, messages to family of infant with lymphedema

BY VALLERY BROWN    Comments Comment on this article1
Published: November 7, 2009



DUNCAN — Kayden Ward has known the kind touch of helping hands his whole life. This week, his family felt it too.

Kayden’s parents and grandmother learned Tuesday that SoonerCare will cover compression suits to ease swelling caused by his congenital vascular lymphedema. Paperwork was being finalized Friday to pay for the garments that cost as much as $3,500 each. The family also received nearly $3,000 in donations from across the country to help Kayden.


Brittney Rodgriguez kisses her son Kayden Ward Friday. Photo by NATE BILLINGS, THE OKLAHOMAN

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The family was concerned about whether the garments would be covered. This week they found out the costs will be more expensive than they had originally thought.

The suits will cost about $14,000 per month.

Jo Kilgore, Oklahoma Healthcare Authority spokeswoman, would not comment specifically about Kayden but said cost isn’t an issue if a child needs a medical device.

"As a rule with children who are users of the program, if a physician deems it necessary, we cover it,” she said.

Kilgore said there are some children who use SoonerCare services often, and other who use it less.

"So it all balances out,” she said.

Once the insurance process is finalized, the Oklahoma City company making the suits should have them ready in about a month, said Melissa Howe, Kayden’s grandmother.

Donations pour in
One week ago, the family had received about $230 in donations towards the compression suits and other expenses.

After a story ran in The Oklahoman Oct. 31, the family has received nearly $3,000.

"I was shocked by how many people wanted to help, even in other states,” said Clay Ward, Kayden’s father.

Donors from California, Virginia, Ohio and across the state have sent money and messages through the family’s Web site, www.babykayden.org.

Kayden’s mother, Brittney Rodriguez, said this week she was given a washer and dryer from a Duncan appliance company. She said the letters of support and donations have helped the family.

"Everything is getting better. We’re getting the hang of things,” she said.

Other families whose children have lymphedema have reached out, and Rodriguez said she’s ready to share what she’s learned so far.

The lymphedema affects 11-week-old Kayden’s lymphatic system. He swells beneath the surface of his skin. The condition also makes him prone to dangerous skin infections.

The suits keep fluids moving through his small body.

The family was in Oklahoma City on Friday visiting a geneticist. So far, no one is sure what is causing the disease.

Howe said this is only the beginning for Kayden.

"He will have this disease the rest of his life,” she said. "We weren’t prepared for it when he was born, so we are doing everything we can to make sure we are ready for anything,” she said.

The family is hosting a benefit Dec. 13 at the University of Science and Arts of Oklahoma in Chickasha. Money made will go toward Kayden’s medical fund.

Howe said her grandson’s visits to specialists across the state are expensive, as are the special lotions, gauzes and other treatments he requires.

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David Stanley Ford





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I'm sorry that Kayden was born with such a hard start to life. There are alot of research projects happening now for lymphatic disorders. The biggest thing you can do is keep up to date not only with your doctors but people involved in the lymphatic world. My support group is Lymphland International Lymphedema Online, we keep in touch with lymphologists and lymphatic doctors across the world to find out any new happenings. I've had lymphedema for quite some time and have become an advocate. My site is http://www.lymphland.com and I also am the content editor of ELymphNotes, which is a lymphedema and lymphatic disorder magazine, http://www.elymphnotes.com we welcome any patients, doctors, parents, teens, caretakers, ect to join us. We are a very active group with over 650 members at present and the biggest thing is we care and dig until we find answers. Sincerely Tina Budde
tina, lockport - Nov 7, 2009 at 8:07 am
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