Share “Young Oklahoma patients get help managing...”

Young Oklahoma patients get help managing chronic disease

Transitions program at The Children's Hospital at OU Medical Center helps young chronically ill patients graduate to adult treatment.
by Jaclyn Cosgrove Published: May 11, 2012

As Caitlin Clark sits in a hospital bed for her dialysis treatment, a nurse graduate helps her study algebra.

Clark, 20, wants to take the ACT this summer and then, hopefully, go to college. This study session is a regular occurrence for Clark, who has been a dialysis patient at The Children's Hospital at OU Medical Center for about four years.

As a patient at a children's hospital, Clark receives care, tutoring and even art lessons from doctors and nurses that she knows and trusts.

But that will soon end. For the past few weeks, Clark has been in a program called Transitions. The program helps teenage and young adult patients with chronic diseases transfer from The Children's Hospital to an adult facility. This is a big step for any juvenile patient.

“We all know them like they're our own friends, children and families,” said Clark's doctor, Dr. Olivera Couloures. “We're very close, and then they get into an adult unit with 150 patients and rotating doctors who don't know too much about anything about them, other than their labs, and it's a loss of that major support.”

Dialysis is a treatment for people whose kidneys aren't functioning properly. Dialysis filters a patient's blood, ridding the patient of harmful wastes, extra salt and water, according to the U.S. National Library of Medicine.

Children on dialysis are typically at the hospital three days a week for four hours, said Noel Jacobs, a pediatric psychologist at The Children's Hospital. They miss a lot of school, sometimes the entire day because they're so tired after dialysis. Staff at The Children's Hospital have seen some children who couldn't read.

“These are very strong kids, and they're resilient, but they face challenges that other children that don't have kidney disease don't have to face,” Jacobs said.

Her case is complicated

Many teenage or young adult dialysis patients at The Children's Hospital don't continue dialysis because they receive organ transplants and no longer need to be on dialysis.

But for Clark, finding a donor is more complicated. Clark has Alagille syndrome, an inherited disorder in which a person doesn't have enough bile ducts in the liver, according to the National Digestive Diseases Information Clearinghouse.

It's a complex disorder that can affect other parts of the body, including the heart, kidneys, blood vessels, eyes, face and skeleton, according to the clearinghouse. Alagille syndrome occurs in about one in every 70,000 births and is equally common in boys and girls.

Continue reading this story on the...

by Jaclyn Cosgrove
Medical and Health Reporter
Jaclyn Cosgrove writes about health, public policy and medicine in Oklahoma, among other topics. She is an Oklahoma State University graduate. Jaclyn grew up in the southeast region of the state and enjoys writing about rural Oklahoma. She is...
+ show more


  1. 1
    This Russell Westbrook Promo Will Get You Jacked For His 2015-16 Season
  2. 2
    Lawton product Mike Warren has record-setting day for Iowa State
  3. 3
    Slain man's body discovered northwest of downtown Tulsa
  4. 4
    Beware of new smart chip credit card scams
  5. 5
    What is phubbing, and is it ruining your relationships?
+ show more


× Trending health Article